The nutrients may include chicken, quinoa, oatmeal, safflower oil or other items that the patient can tolerate. And the clinic pushes feeding by mouth even bacon and Cheetos, if the child wants them , which can be challenging in those who have had multiple abdominal surgeries as babies and know nutrition as a thing that leads to diarrhea or vomiting. The more a child can consume by mouth, the less reliant he will be on the intravenous feedings and G-tube nutrition.
Avoiding infection — Infections through the central line in the chest are perhaps the greatest threat to the children. Avoiding transplantation saves organs for other patients who need them more. Also, intestinal transplants have a lower five-year survival rate — about 55 percent — than heart, kidney, liver and pancreas transplants.
Kaylip Franks brought his baby son, Anakin, to the rehab clinic from Oklahoma and fully expected transplantation. Anakin underwent a STEP surgery, among other therapies. Anakin, now 1, no longer has the central line in his chest but does have the G-tube in his belly.
Desmond Brown, a 4-year-old from Louisiana, was born premature with only a tiny length of functional small intestine. His grandmother Sandra Ryan says staffers at a hospital in their home state suggested that Desmond would not make it. They asked her to sign a do-not-resuscitate order and sent in a pastor. Many young patients, however, endure roller-coaster rides of hope and disappointment. Braxton Anderson, 6, still has the central line in his chest and the G-tube into his stomach.
But Braxton, the smallest kid in his kindergarten class, had lost 4 pounds in the previous few weeks. As it turned out, Braxton, of Callaway, Nebraska, had a central line infection, which was treated at the med center. Soon he was putting on weight. It tells them the warning signs of infection and orders them to take a child showing those signs to a hospital immediately. Some families also use home care services.
Khloe Morris, 4, had a bowel disease and lost most of her small intestine shortly after birth. The girl, from Banks County, Georgia, was referred to the clinic about three years ago. Mercer said her liver function has improved and her nutrient intake is good enough to consider taking the central line out of her chest this summer. Medicaid reimburses the clinic for its work, but approval from some out-of-state Medicaid programs can take months, Gerhardt said.
Contact the writer: rick. Braxton Anderson's recent weight loss was alarming, but it turned out to be caused by a treatable central line infection. An Omaha doctor who specializes in infectious diseases said a mask mandate in Omaha will help slow the increase in COVID cases and cushion the blow on hospitals. Please subscribe to keep reading. You can cancel at any time.
Already a subscriber? Log in or Activate your account. Roughly one-third of intestinal transplantation procedures performed on children around the world has been done at Nebraska Medicine. Request More Information.
Founded in , the registry exists to support the ongoing evaluation of the scientific and clinical status of solid organ transplantation, including kidney, heart, liver, lung, intestine and pancreas. The SRTR contains current and past information about the full continuum of transplant activity—from organ donation and waiting list candidates to transplant recipients and survival statistics.
The Intestinal Rehabilitation Program at Nebraska Medicine has been treating patients for more than 16 years by providing a successful alternative to transplant for selected patients suffering from intestinal failure. Today, Nebraska Medicine is one of a few facilities with expertise in intestinal failure—and one of the busiest programs in the United States. Innovation, solid outcomes and high patient survival rates have distinguished our center as a leader in intestinal failure.
Nebraska Medicine is also one of the original Medicare-designated centers to perform multi-visceral transplanting multiple organs of the digestive system and intestinal transplants for pediatric and adult patients in the nation. The Intestinal Rehabilitation team will continue to work with you, your family and your local doctors well after you leave Omaha. Our team will always be available for questions or consultations around the clock.
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